Quick Facts

  • Moyamoya means “puff of smoke” in Japanese
  • Moyamoya is detected by an MRI only
  • Affects 1 in 2,000,000 people
  • There are 6 stages of progression for moyamoya
  • The progression of the disease varies from person to person
  • People diagnosed with moyamoya will always have moyamoya
  • Once diagnosed the only option is surgery
  • An angiogram is required prior to surgery to map out the surgery
  • 6% of moyamoya patients are in the same family
  • The majority of patients have had a TIA/mini-stroke or a stroke prior to diagnosis
  • The average age of symptoms first appearing is 6 ½ years old
  • The average age of surgery is 7 years old
  • It is more common among girls than boys
  • It is more prevalent in children of Asian descent
  • Follow up in patients with moyamoya is extremely important to help build a knowledge base
  • MRIs are needed for the rest of the patient’s life
  • Daily aspirin is required for the rest of the patient’s life

Victoria and I wonder aloud about other children in Jared’s place – children whose parents may lack the confidence to press medical teams for answers. Too often, a stroke in a child will be missed. -- Jonathan Dienst New York Times January 19, 2010