Justin in 2007

Justin in 2007

Website Pic

Justin in 2016

Justin Doo was diagnosed with moyamoya in March of 2007 when he was just 7 years old. Moyamoya is a very rare condition in which the arteries leading to the brain progressively narrow and blood flow to the brain is restricted. The results may be painful headaches, strokes and transient ischemic attacks (mini-strokes).

This disease affects only 1 in 2,000,000 people. The only option to help stop the progression of moyamoya and alleviate the symptoms is surgery. Justin bravely endured 8 hours of brain surgery in April of 2007.

Justin will always have moyamoya.

Many questions remain unanswered about the disease. Is it genetic or environmental? Why does it cause intense migraine-like headaches? Why do symptoms vary from child to child?

Moyamoya is a vitally-underfunded and little-understood disease. Our goal is to increase awareness of the disease and to help raise funds to facilitate further research into moyamoya and its causes. Continued research is critically important to promote better treatment, earlier diagnosis and, one day, a cure.

Victoria and I wonder aloud about other children in Jared’s place – children whose parents may lack the confidence to press medical teams for answers. Too often, a stroke in a child will be missed. -- Jonathan Dienst New York Times January 19, 2010